Hi everyone. Well this isn't the same cheerful posts that we normally have. I usually only post the exciting news with Alexa, but we wanted to inform everyone about something that's been going on. We apologize for not emailing or calling everyone individually. It's been a crazy few days and that's just impossible to tell everyone, so please don't be offended if this is the first you're hearing of the news.
We are currently at Wesley Medical Center in Wichita. Saturday night Alexa had a seizure. Mother's instinct with God's help, I found Alexa as soon as she started having the seizure. I had just turned off the light to go to sleep and I heard 3 weird noises from her so I decided to go check on her before I went to sleep. She was in her bed basically having convulsions. (Is that the right word?) I take her out and put on the floor, on her side, because I had no idea what was going on and I just knew to put her on the side so she wouldn't choke. I yell for Adam and he calls 911 right away. We're estimating that Alexa was seizing for about 2 minutes. It was the scariest thing ever. Then her lips start turning blue and her eyes roll to the back of her head. Scary. Scary. Scary. Right before EMS showed up, Alexa did stop and vomited a little. She was breathing but irregular.
We got to the hospital about 11:45 Saturday night. We were moved to PICU around 3:00 am. Once they were done poking her and poking her, she did sleep through the night. When she woke up, she was acting real funny. She ends up having another seizure but not a full blown one. She was in and out for about 45 minutes. During that time, the nurses and doctors were trying to get her IV. They finally gave her valium to stop the seizure because they were having such a hard time with the IV and then gave her 2 anti-seizure medicines. Alexa was obviously really out of it the rest of the day. They did a spinal tap, brain MRI, and blood work on Sunday. All those results came back normal. Alexa has ran a fever since we've been here. They did an EEG yesterday and those results were normal.
So after all the tests and everything, they think that her seizure was caused by a spike in her temperature with the fever. This is not uncommon in kids. They have a name for this type of seizure, but I don't know how to spell it. They couldn't find a cause for her fever, so they believe that it is from something viral. Alexa will not be put on any anti-seizure medicine, but we will get a prescription for something to have with us at all times that we would give her if she did have another seizure. If she ever does, we'll go see the neurologist and they will probably put her on meds then.
We were moved last night from the PICU to a regular room. We will be here until Alexa starts to eat/drink "normal". She has been refusing her milk. So we just pray she'll feel better soon so that we can get her home. She seems to be a little more comfortable today. Her temp has gone down to 99 so she hasn't had any ibuprofen since midnight. We will update the blog with any new information or when we get to go home. Thanks for the prayers!
